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Testing Baby: The Transformation of Newborn Screening, Parenting, and Policymaking (Critical Issues in Health and Medicine), by Rachel Gro
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Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized.
Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates.
- Sales Rank: #1799607 in Books
- Brand: Brand: Rutgers University Press
- Published on: 2011-09-01
- Released on: 2011-08-31
- Original language: English
- Number of items: 1
- Dimensions: 9.02" h x .66" w x 5.98" l, .95 pounds
- Binding: Paperback
- 290 pages
- Used Book in Good Condition
Most helpful customer reviews
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Clear Illumination of a Complex Issue
By Kindle Customer
Like many parents, I had not kept up with the ever-changing field of new born screening. With a compelling and even handed approach Grob researches the impacts on parents who have had a positive screen result for CF, identifying differing impacts on families with symptomatic and non symptomatic children.
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